He has a rare degenerative neurological disorder called Leigh’s disease. It caused his brother’s life in 1996 and unfortunately, it will eventually take his life as well. The disease affects a person’s cells and causes them not to be able to make energy. Once a cell is affected, it dies. The disease also causes brain lesions.
Matt can no longer talk or lift his head, but that doesn’t stop him from celebrating Christmas, event thought it could be his last one. But when Santa came to him on Christmas, it wasn’t to deliver gifts; it was to pick some up from Matt that he wanted to give to needy children. He wanted to be sure that other children had a happy Christmas who were poor and in need of help.
He told Santa that he didn’t want any gifts himself; he just wanted people to send him Christmas card and hoped that people all over the world would correspond with him. He has gotten as much as 80 cards in a day and he’s already been receiving up to 80 cards a day and his mom has been hanging them up in his room.
Merry Christmas Matt, you are a true inspiration to us all. God Bless.